tag:blogger.com,1999:blog-3406721589945384372.post3816885086047092573..comments2024-03-25T03:28:44.234-04:00Comments on Just the Vax: Letters: Dear Doctor - Dear Parentjustthevaxhttp://www.blogger.com/profile/07081499341191718417noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-3406721589945384372.post-37080396051699511262012-06-26T15:07:03.674-04:002012-06-26T15:07:03.674-04:00@ anonymous: Your post sounds *familiar* to me. ...@ anonymous: Your post sounds *familiar* to me. Have you been to other sites to post about your child and her hepatitis B vaccine-induced-encephalitis...that caused her autism?<br /><br />You state that your child encephalitis; your diagnosis or diagnosed by a pediatric neurologist when she was hospitalized in a pediatric intensive care unit?<br /><br />Do you think of your autistic child the same way Alison McNeil does?<br /><br />"You broke my child. You took a healthy baby boy and by 18 months you left me with a yard sale of medical problems and neurological damage."liladynoreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-62876015674148751022012-06-21T18:07:48.582-04:002012-06-21T18:07:48.582-04:00I loved the letter to Dr. Asshat, and, like many w...<i>I loved the letter to Dr. Asshat, and, like many who commented on it, urged the writer to send it to him, he has to decide how to deal with his guilt at crippling this child for life, just so as not to make waves or trouble for himself.</i><br /><br />You would love a piece of self-serving drivel like that. Too bad Alison McNeil doesn't have the ovaries to send it. My guess is is that she has made up most or all of it to satisfy her insatiable martyr complex and would probably get a nice letter from a law firm. You are also deluded to believe that a doctor administering a vaccine has knowingly "crippled" a child even if an adverse reaction did occur. Is that what you 'mummy warriors' are calling autistic children these days?<br /><br /><i>Doctors have been left way behind in this parent-led movement to discover the ways to prevent and treat autism. All they care about is money, authority, and prestige, while all we care about is our children.</i><br /><br />Cripes you revolting mums are full of yourselves. You don't know how to prevent nor treat autism. You really do believe that Googling a few things make you authorities; your poor children. Your 'care' leaves a lot to be desired.Science Momhttps://www.blogger.com/profile/08832263571481452559noreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-82746985847363198152012-06-21T11:36:33.599-04:002012-06-21T11:36:33.599-04:00My daughter was damaged by the hep-B vaccine at bi...My daughter was damaged by the hep-B vaccine at birth. As it did in Judy Converse's son, it caused four days and nights of endless screaming, vaccine-induced encephalitis, and she was later diagnosed with autism. At least she wasn't killed by it, like Michael Belkin's daughter. I loved the letter to Dr. Asshat, and, like many who commented on it, urged the writer to send it to him, he has to decide how to deal with his guilt at crippling this child for life, just so as not to make waves or trouble for himself. And then, just like our doctor, being against the GFCF diet which really helps! My daughter's doctor didn't have a clue what to do about her extremely severe constipation, just suggesting doubling the Miralax from once to twice a day. It did nothing to help, and she had no further ideas. The GFCF diet stopped her constipation two days after she started it this past March. Doctors have been left way behind in this parent-led movement to discover the ways to prevent and treat autism. All they care about is money, authority, and prestige, while all we care about is our children.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-77231742995642116962012-05-29T14:47:27.662-04:002012-05-29T14:47:27.662-04:00Anon: I am saddened that people assume that every...Anon: <i>I am saddened that people assume that every drug is 100% safe and effective. </i><br /><br />Who thinks that? Please tell us where Science Mom and Catherina have stated that every drug is safe and effective.<br /><br />And who also thinks that anecdotes is equivalent to data? My kid had seizures first as a newborn before he ever had a vaccine, and again while suffering from a disease.<br /><br />He also has a genetic heart anomaly that there are eighteen known genetic sequences, none of which he has. That is because genetics is still in the data collection stage, so it is often not conclusive. You child may have a genetic sequence related to his symptoms that have not yet been discovered. The first one for my son's heart condition was found five years ago, and about four more were added in just the last year or so. <br /><br />Now exactly what actual data do you have that shows seizures occur more often after vaccines than with the diseases (or for no known reason). Just post the title, journal and date of the PubMed indexed papers with that data (not anecdotes!), for example:<br /><br />Vaccine. 2012 Jan 5;30(2):247-53. Epub 2011 Nov 12<br />Lack of association between childhood immunizations and encephalitis in California, 1998-2008.<br /><br />Pediatrics Vol. 126 No. 2 August 1, 2010 (doi: 10.1542/peds.2009-1496) <br />Lack of Association Between Acellular Pertussis Vaccine and Seizures in Early Childhood<br /><br />Pediatrics. 2010 Jun;125(6):1134-41. Epub 2010 May 24.<br />On-time vaccine receipt in the first year does not adversely affect neuropsychological outcomes.<br /><br />Pediatr Infect Dis J. 2010 May;29(5):397-400.<br />Lack of association between measles-mumps-rubella vaccination and autism in children: a case-control study.<br /><br />Pediatr Infect Dis J. 2006 Sep;25(9):768-73.<br />Encephalopathy after whole-cell pertussis or measles vaccination: lack of evidence for a causal association in a retrospective case-control study.<br /><br />J Infect Dis. 2005 Nov 15;192(10):1686-93. Epub 2005 Oct 12.<br />Subacute sclerosing panencephalitis: more cases of this fatal disease are prevented by measles immunization than was previously recognized.Chrishttps://www.blogger.com/profile/14428361191787397415noreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-83865922668299449012012-05-25T23:20:12.737-04:002012-05-25T23:20:12.737-04:00I am saddened that people assume that every drug i...I am saddened that people assume that every drug is 100% safe and effective. I used to believe it too. I believed the doctors when they told me that vaccinating myself and kids was the best thing. My son lost his coordination with his hands and regressed into his own world after his 16 month shots. The doctor told me it was a coincidence. I kept vaccinating my kids. My other son had seizures right after his one year vaccinations. I was told that is a normal reaction and not to worry. However, my son stopped responding to his name. I started questioning vaccinations from that point. It is NOT a coincidence and if it is genetic the tests we had didn't show it. However, bleeding, breathing, and living is genetic so I guess this must be too. I didn't read a conspiracy website or research beforehand. I trusted those who were supposed to "know" what was for "our best." And since I started looking around, I noticed vaccinations just don't add up. I wish I never vaccinated my kids, they would have had a better chance with the disease itself. Yes, I had chicken pox, measles etc and it wasn't as bad as the scare tactics used to promote fear from those diseases.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-18223779619535307152012-05-22T19:00:00.420-04:002012-05-22T19:00:00.420-04:00I didn't do this with my child as she was the ...I didn't do this with my child as she was the third -- her half-brothers were already seeing Pediatrician L -- but I do recommend that prospective parents INTERVIEW pediatricians. Some here in CA in group practices have regularly-scheduled "meet the pediatricians" group appointments for prospective parents, typically available in the 3rd trimester. <br /><br />Another type of practice that's common in the US is the "health maintenance organization" HMO -- you don't have a regular pediatrician, you see who is on duty. (This actually varies by clinic, some do have regular patients, others it's like catch of the day)<br /><br />I do think that some practices, at least around here, are adopting MR's "how to take care of your unvaccinated child" handouts.Liz Ditzhttps://www.blogger.com/profile/03455722013211350247noreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-22737117390898502782012-05-19T07:15:02.915-04:002012-05-19T07:15:02.915-04:00Thank you MR - those are all great ideas!Thank you MR - those are all great ideas!Catherinahttps://www.blogger.com/profile/14580939201909356691noreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-29034919580861702782012-05-18T23:09:36.006-04:002012-05-18T23:09:36.006-04:00Another though that came to me while I was looking...Another though that came to me while I was looking through the links. What if, instead of dismissing patients or explaining the benefits of vaccination, the Ped were to give an illness instruction sheet. This could state the symptoms of all the diseases that are not being vaccinated for and inform the parent that if the child has any of those symptoms there is a special protocol that must be followed when having their child seen by any Dr (since the child is un-vaxed). I realize that many initial symptoms of vax diseases are similar to a cold, but that is part of the point really.Middle Roadernoreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-33993467579108678822012-05-18T21:45:11.342-04:002012-05-18T21:45:11.342-04:00To answer your question. I don't think that a...To answer your question. I don't think that a 1 hour "setup" appointment would be beneficial as a standard practice. I certainly didn't need 1 hour at the first appointment (and I was still groggy from a difficult birth with excessive blood loss).<br /><br />I would like to see more Dr's offices allowing sufficient time to see patients and answer their questions. I have been to offices that are always behind and the time with the Dr always seems rushed. The Ped I am currently with (and the Hospital Midwife's office for my last birth) is great about this. I am almost always seen within 10 min of my appointment time and the Ped always asks if there are any questions or concerns and takes the time to answer them thoroughly. I have occasionally even been seen a few minutes before my appointment time if I get there early.<br /><br />I believe that this is also a two way street. If I were to ever have a question that involved a lengthy discussion, I would make a separate appointment for it and would have the scheduler put a note on the appointment with the topic of my question. This would give the Ped enough time to get familiar with the topic and give me the best info possible.<br /><br />I do agree with the first Anon that some medical professionals need to be out in the parental sphere. Perhaps giving Peds and Nurses time to attend their own child's activities would be a start. As for the older Drs (or Dr's without children), perhaps some kind of continuing education credit could be given for community education activities. Knowing the concerns of those you are liable to be working with is definitely the kind of education that should be continuing.<br /><br />As a side note, it is much easier to follow a conversation if you Anonys would identify yourselves in some way. Even just a screen name would work.Middle Roadernoreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-24077417639138297482012-05-18T16:54:05.996-04:002012-05-18T16:54:05.996-04:00you misunderstand me - I am saying, the doctor did...you misunderstand me - I am saying, the doctor did not lie, but a couple of lies may have kept the parents with him.Catherinahttps://www.blogger.com/profile/14580939201909356691noreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-70312145115414049952012-05-18T16:53:33.241-04:002012-05-18T16:53:33.241-04:00The idea that doctors assume blanket medical care ...The idea that doctors assume blanket medical care are perfect in every situation is a strawman.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-4111535494329704202012-05-18T16:22:28.008-04:002012-05-18T16:22:28.008-04:00That's just it, if many doctors stop assuming ...That's just it, if many doctors stop assuming that blanket medical care, tx, statements are *perfect* in every situation, for every child, then the lying stops and healing and needed intervention can beginAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-36215570063753283992012-05-18T11:04:35.695-04:002012-05-18T11:04:35.695-04:00Yes, I think this parent is wrong. She (and her hu...Yes, I think this parent is wrong. She (and her husband) are angry angry angry at the meme (not reality) of the ruthless doctor willfully poisoning a poor child into autism with teh ebil vaccines and denying their child (snakeoil) "healing". This is happening in the family's head. From the letter, the only thing that would have kept communications channels open in their case would have been if the doctor had lowered his voice and told them "I am so sorry, I am being oppressed by evil pharma to push this on you, it is all the fault of them and the evil vaccine overload and if you come after hours, we can start urine/garlic infusions and we can get your little boy back" (hyperbole on my part, but only partly).<br /><br />Of course there are bad doctors, as there are are poor practitioners in any profession. Let's assume that this family's doctor is actually a nice and competent guy (he sounds caring, even in the mother's rant) - what do you think would it take to keep communicating with the family, short of lying to them (i.e. telling them that vaccines caused their child's autism and biomedical intervention is going to make him neurotypical)?Catherinahttps://www.blogger.com/profile/14580939201909356691noreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-68381889368229645172012-05-18T10:31:14.371-04:002012-05-18T10:31:14.371-04:00My question is, do you think this parent was *wron...My question is, do you think this parent was *wrong* for the letter? Or better yet, why can't peds, docs, nurses, and other medical professionals admit if and when they are *wrong?*<br /><br />Nobody is perfect - no parent, medical professional, CDC, AAP, and doctors surely are not God. Too many medical professionals lack bedside, and ultitmately compassion. I completely "get" that doctors/staff are overworked, underpaid, insurance nightmares, parent non-compliance, etc., but the every-day famialiarity and misgivings of their profession, imo, sometimes jades them.<br /><br />So perhaps, if there was a paradigm shift of helping families find a better fit for medically caring for their child, instead of simply dismissing them, it could potentially end ped vrs. parent fight, working together, not writing each other off.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-40014711181273443952012-05-18T09:56:35.757-04:002012-05-18T09:56:35.757-04:00thank you Anon - so you'd think rather than ta...thank you Anon - so you'd think rather than tackling the drastically vaccine-opposed in the practise, you'd go and contribute in the community to spread evidence-based information about vaccines, answer questions etc? Would the ped do that? Or a nurse?Catherinahttps://www.blogger.com/profile/14580939201909356691noreply@blogger.comtag:blogger.com,1999:blog-3406721589945384372.post-6121325981634234792012-05-18T09:42:58.425-04:002012-05-18T09:42:58.425-04:00Do you really believe that spending any amount of ...Do you really believe that spending any amount of time could convince this person of anything. This individual hold a religious like antivaccine point of view. Those open to legitimate discussion might benefit from some additional time with their pediatrician. ... a very small percentage. I have found addressing issues about vaccines at Q&A sessions at PTA meetings, church groups and daycare cares to be the most efficient method to reach out and address concerns and questions. Most important of all however is having good resources (ie, Internet references) to which refer parents.Anonymousnoreply@blogger.com