Routine vaccination leaves man quadriplegic? Open Letter to Channel Nine

Like several other outlets, Channel Nine News reported the story of Ben Hammond, a Western Australian father of five, who came down with a debilitating episode of what is purported to be ADEM after a whooping cough booster. Now the Northern Rivers Vaccination Supporters have written an Open Letter to Channel Nine, which I am reposting here with kind permission, since it is, in contrast to Channel Nine's piece, evidence based and factual and important.

AN OPEN LETTER REGARDING A RECENT CHANNEL NINE NEWS STORY, THEIR INACCURATE PORTRAYAL OF VACCINE RISK, AND THE IMPORTANCE OF THE ADULT WHOOPING COUGH BOOSTER.

A news story that aired nationally on 2nd and 3rd June, 2014 on the Channel Nine News network and the Today Show was inaccurate and grossly irresponsible.

The story featured Perth father Ben Hammond, who received a Diptheria/Tetanus/Pertussis booster, and became seriously ill eleven days afterwards. Ben’s condition was said to be ADEM (Acute Disseminated Encephalomyelitis), a rare auto immune condition. This disease lead to Ben becoming quadriplegic for several months.

First of all, we wish to express our sorrow and sympathy for everything this man and his family have been through. By all accounts they have suffered a great deal physically, emotionally, and financially.
We are not writing to challenge or diminish what has happened to the Hammonds. This family deserves the support and generosity of the public to help them get back on their feet. We support a full investigation into the cause of his illness, so there is transparency on the facts of whether the vaccine caused it and the risks.
However the story breaches the Australian Communications and Media Authority Code of Practice (1):

• Section 4.3.1: The article was not factual or accurate and did not represent
  viewpoints fairly. It did not state:
    o How rarely, if ever, it has been shown that ADEM can be
       caused by vaccination
    o Any evidence to support this allegation
    o Why adults require the Whooping Cough (pertussis)
       booster
    o The relative risk to babies of whooping cough, versus
        the risk of the alleged vaccine reaction
• Section 4.3.2: It could cause public panic about vaccines and place
  newborn babies at risk

Why adults require Whooping cough boosters:
The Hammonds were offered a free booster during the time that Australia was experiencing the world’s largest Whooping Cough epidemic. This peaked at 38,500 cases in 2011. In response to thousands of babies being hospitalised and tragically over ten babies dying nationally, State governments have distributed millions of doses of the vaccine for free to new parents since 2009. Without the program, the number of grieving families would have been significantly higher.
Our group includes families whose babies have died from Whooping Cough, and who have worked hard to raise awareness of the need for adult boosters. This has saved lives, particularly of vulnerable premature babies.

Adults need a booster because of waning immunity, this happens both after the vaccine, and following ‘natural’ infection. Recent research has shown that this can occur as quickly as after four years(2). Unfortunately, nationally, less that 12% of adults have had a Whooping Cough booster (3). This means if there is an outbreak, an adult is susceptible to catching the disease, and passing it on to others. For most adults, this causes an irritating coughing illness that can last for months and lead to rib fractures and pneumonia; in young infants it can be deadly. Babies cannot have their first dose of protective vaccine until they are 6 weeks to 2 months old, so these very young babies must rely on adults being up-to-date with their boosters to be protected (4).

Risk of whooping cough to babies:
The story did not state the relative risk of acquiring ADEM after a vaccination, when compared to the risk of a baby catching whooping cough.

   • Nearly all babies that catch whooping cough require care in hospital.
   • It tragically proves fatal in 1 in 200 who catch it (5).
   • There is no cure for whooping cough. Babies face months of disease, and once it takes hold, the only treatment is supportive, with oxygen, and for critical cases, ventilation and ECMO (life support that, at best, also carries a very high mortality) (6).

Thankfully new research has shown that if a woman gets vaccinated when pregnant, this may halve the risk of the baby catching whooping cough (7). However, we are concerned your program will negatively impact on the uptake of this vital public health measure.

The facts about ADEM:
The news story should have featured a medical expert, to provide some facts about ADEM. Without the context of how rarely ADEM occurs after a vaccination, this omission could greatly damage public confidence in the vaccination program.

The alarmist headlines used such as “Routine vaccination almost fatal” “Vaccine danger” “Man becomes quadriplegic following routine vaccination” “One shot left him crippled” “Destroyed his life” and “Vaccination nightmare” were not counterbalanced with any information portraying the real-life risk of developing ADEM. Instead, we were solely given the Hammonds' own assertion of it’s cause.

ADEM may or may not be associated with some vaccines. We know that it occurs at such an extremely low rate it is impossible to determine causality with any scientific accuracy.
Indeed it is so rare the risk is something like 8 out of 1 million risk to the general population. Out of those cases, less than 5% follow immunisation, and it is much more likely to follow infection by one of the vaccine preventable diseases (8). There are many common and not-so-common bacteria and viruses that induce ADEM at much higher rates than those associated with vaccination.
The only vaccine proven to induce ADEM is the Semple form of the rabies vaccine. Other vaccines have all been implicated, most commonly the MMR vaccine, but the majority of the studies that correlate vaccination with ADEM onset use small samples or case studies (because there are so few cases to begin with). Large scale epidemiological studies have not shown an increased risk of ADEM following vaccination.

Also misleading was the implication Mr Hammond had “no immune system" and “no kidney or liver function” from the vaccine. ADEM should not cause organ dysfunction or immune suppression (although medication used to treat it can), and the paralysis it causes is usually temporary.
We take vaccine safety and transparency about that safety very seriously, and support the Hammond's use of the media to highlight the rare possibility of adverse vaccine reactions. The family deserves respect, and privacy, and we understand their need for financial assistance. We hope Ben’s case highlights the importance of a no-fault vaccine injury compensation program in Australia, for when adverse reactions to vaccines do occur.

However, unnecessarily scaring people away from vaccination programs such as against whooping cough could deter adults from having a booster, and place vulnerable newborns at high risk. News reports regarding vaccination should be clear and balanced. They need to present the relative risks of an adverse reaction to a vaccine when compared with the risks from vaccine preventable diseases. The media’s role in public perception of healthcare, risk of disease, and vaccine safety should not be underestimated, nor the responsibility taken lightly.


1: http://tinyurl.com/ltbyrl4
2: Wendelboe, A. M., Van Rie, A., Salmaso, S., & Englund, J. A. (2005). Duration of immunity against pertussis after natural infection or vaccination. The Pediatric infectious disease journal, 24(5), S58-S61
3: http://www.aihw.gov.au/publication-detail/?id=10737418409
4: http://www.chainofprotection.org/adultimmunisation
5: http://tinyurl.com/pwfthsw
6: http://tinyurl.com/msyg6pg
7: http://tinyurl.com/k3rp7t3
8: Huynh, W., Cordato, D. J., Kehdi, E., Masters, L. T., & Dedousis, C. (2008). Post-vaccination encephalomyelitis: literature review and illustrative case. Journal of Clinical Neuroscience, 15(12), 1315-1322.

Welcome on the blo(g)ck Vaxplanations

There is a new blog on the block - Vaxplanation sets out to explain the myths around vaccination (we can never have enough of those). Their first post takes down a sad denialist piece which trivialised the dangers of measles and propagated loads of old anti-vaccine lies, well, myths. The piece is not only eloquent, but also spiked with the right amount of information, snark and some lovely memes, driving home the essentials - vaccination is safe, not vaccinating is the wrong choice.

Welcome Vaxplanations - looking forward to your next!

KISS 2/24/14 Media storm about "polio like illness"

I was just about to write about this, since less than 24 hours after the embargo was lifted on a meeting presentation on a handful of children presenting, over the course of a year, with irreversible paralysis of the limbs, and of whom 2 were found to harbour an enterovirus, the first conspiracy theories have already popped up (this is just polio by another name, yada yada).

However, the Skeptical Raptor has done a perfect job - so please read this

oh look, Matthew's digging himself in deeper

after some back and forth tweeting as a consequence of yesterday's poorly researched Daily Mail rehash, during which Matthew Mientka assured us that "he agreed with us all" and was informed of his various oversights

he now takes the biscuit with his lazy edits:

I am actually a bit speechless. We have lost a "new" from the title, but it now reads "Vaccines And Autism: Evidence shows "Strong Link" Between Autism And MMR Vaccine" - as if the whole body of scientific literature pointed to a connection, which is, of course, opposite of the truth. Matthew continues:

Scientific evidence has suggested a strong association between autism and the measles, mumps, and rubella (MMR) vaccine, following nearly a generation of contentious debate on the vaccine's safety.

Actually, it hasn't. Or if a paper has, it has since been rebuked or retracted. There is agreement in the scientific community that MMR is not linked to autism.

The 03.02 PM revision also still retained the 2002 statement of the former alleged spokesman of the British National Autistic Society, squeezed between more recent info making it appear as if Harris still was the spokesman for the NAS (which he isn't) or the NAS actually called for the suspension of the MMR (which they aren't):

I now no longer assume a lazy journalist was out for a quick headline, beating others to the story. I now assume either complete incompetence or wilful misrepresentation of the facts.

Edited to correct that Mr Harris is actually working for Jabs, a UK anti-vaccine organisation. This is a mistake that Mr Mientka took from the Daily Mail web site, but the BBC had it right in 2002.

Matthew Mientka, Medical Daily, takes the prize for Daily Mail necromancing

and the piss poorest, most irresponsible and non-researched reporting I have seen in a decade and I have seen a lot. His latest piece in the Medical Daily's "Healthy Living" section is headed:

In his write up, Mr Mientka essentially recycles a Daily Mail article - this one:

which reports on a paper from Dr Vijendra Singh which finds inappropriate antibodies in autistic children vaccinated with MMR. If that sounds both familiar and old, it is not surprising. That article is 11 years old! Granted, as previously blogged by Liz Ditz and jdc325, the Daily Fail does not often provide date stamps on their articles, but the page info clearly has 2002-08-09 as a publication date. JDC did write to the Daily Mail in 2011, but it seems they did not add a date. However, the fact that the "current" measles cases in the Daily Mail article are compared to "the last quarter of 2001" should have given Mr Mientka a hint. Or if he misread that, seeing Andrew Wakefield being referred to as "a British expert", who "found fragments of the measles virus from the MMR jab in the guts of autistic children"..."earlier this year" should have made him suspicious.  Or that the article is "no longer" accepting comments? At the very least, a quick check with the National Autistic Society in the UK would have shown them NOT to call for suspending the MMR and Jonathan Harris has not worked for NAS since 2008 anyway is the Birmingham contact for Jabs. It is one thing for an anti-vaccine cureby or granola-mummy page to fall for such an obviously outdated article, but a journalist, one would think, should be a bit more careful. At the time of me writing this, the article had been tweeted 18 times.

Todd W. was fast to ask Mr Mientka for his sources - the answer was a bit vague:

This one, a few minutes later, is a bit more promising:

Yes, please! In all likelihood, everyone will still be playing "whack a geriatric mole" for weeks, thanks to one person's shoddy research.

Edited to correct that Mr Harris is actually working for Jabs, a UK anti-vaccine organisation. This is a mistake that Mr Mientka took from the Daily Mail web site, but the BBC had it right in 2002.

Welcome Necromancers - find the Wakefield threads here

I was wondering why we had a necromancer on an old thread linking directly to Andy Wakefield's site, that one callously disregarding anything but Wakefield's (business) interests. I discovered the potential explanation on page 25 of the Guardian magazine:

In his book Callous Disregard, Wakefield claims his findings of autistic enterocolitis have been "independently confirmed in five different countries". He cites five studies, two of which were authored by his friend, collaborator and Autism Team star Arthur Krigsman. One of those studies appeared in Autism Insights, a medical journal on whose board Krigsman sat in 2010. Two other studies were by Italian doctor Federico Balzola. According to the justthevax blog, the first of these was a case report of a single adult autistic patient with an inflamed bowel, and the second a "meeting abstract" that "never saw the light of day as a peer-reviewed study". The last one, a study by Dr Lenny Gonzalez, while not reporting finding a distinct "autistic enterocolitis", concludes that "autistic children have a high incidence of gastrointestinal disease". (my bold)

Ok, I admit, I am vain, and that section did generate a squee. The whole article is worth reading though, very well researched by Alex Hannaford, who is not shy to call Wakefield's operation what it is "Autism Inc.", a money generating machine. Hannaford tried to proffer Wakefield's (and Polly Tommey's) comments, but they only sent their lawyers' roboresponse (Wakefield did not fabricate data, there is such a thing as autistic enterocolitis, yada yada). Instead, he interviewed (among others) the lovely Autismum Martine O'Callaghan, founder of the cwtch-network, whose autistic son Cledwyn is just as lush as Michael Fitzpatrick's son James, and Ari Ne'eman, founder of the Autistic Self Advocacy Network. Not surprisingly, they emphasise the need to improve quality of life of autistic children and adults, by appropriate services (for example schools). Excellent article - read it.

Now for those who'd like to insist that really, Wakefield's works have been independently verified, please read my previous two blog posts:

"Independent" the Wakefield way (really something for the fail blog)

and

Still no independent confirmation of Wakefield's claims 

and feel free to add research you think we may have missed to discuss. Can I ask though that instead of just dropping a link into the comments, or basic copypasta from the usual anti-vaccine conspiracy sites, you leave one article at a time, with a proper, i.e. retrievable, citation and a blurb in your own words (much as we did in those blog posts) stating what was done in those papers and how this supports the "vaccines lead to gut damage leads to autism" notion? Cheers.